Edit: We have written several posts about the accident & Eira’s journey here, click > here < to see them all.
Yesterday Eira had her third CT scan after the first failed one (when she vomited) and the subsequent one. The scan showed that there is still air in her brain- we were not told there had been air after the first scan so didnt know what to think. The hospital said to go home and go back to emergency if she started vomiting again between now and her next appointments on Monday. She has another neurologist appointment then as well as an ENT specialist. She has been complaining that things are too bright and hurting her eyes and head, even when there aren’t any lights on in the room, and saying that it’s too loud even when there is very quiet talking outside her door. She’s also complained about the noise of air conditioning being too loud and the muffled noise of chicks outside a closed door so it seems something is going on with her hearing.
We decided to bring her home (we went in last Sunday night and it’s now Saturday) instead of taking her to another hospital even though we wanted another opinion. This is because there were several mistakes at the hospital and we have been told that if we brought in another Indonesian doctor for a second opinion, they would close ranks and just repeat what the first doctor told us. (The neurologist told us several times the skull fracture would heal in 2 weeks, which we knew was definitely not right, and then when we repeated the question as we were about to leave, because we knew his answer had been wrong, he said ‘oh no more than 2 weeks’ so there is obviously some kind of communication problem that makes trusting medical staff here very difficult). We’ve also been told that the hospital with better doctors is dirty, and an infection is not something we can risk at the moment- we have her medication so can give it to her at home, and she can rest better as she’s not woken up at 10pm and 5.30am for observations.
The final straw for us with the hospital was that after the CT scan yesterday the nurse did not re-set Eira’s drip (it moved during the scan and stopped working). It was also hurting her and I asked for it to be removed as we were supposed to be leaving last night. The nurse told me that they would not take it out until they had received proof of first payment of the medical bills- they were literally keeping her attached to a painful, non working drip to stop us leaving. When Eira started to cry I told the nurse that if she didn’t take it out right there and then I’d do it myself, so they did it. I’m absolutely disgusted that anyone would behave like that, it is beyond comprehension.
We are trying to get in touch with a neurologist from somewhere else and have got contacts for the uk and Singapore (thank you everyone who sent contacts) so patrick is calling them now. Our main concern is when she can fly- we want to get her out of Bali ASAP but have no idea how the air affects her, and she doesn’t have another CT scan booked so we don’t know how to assess if she is ok to fly or not.
The good news is that she is happy to be home and is in good spirits. She’s getting tired easily, saying that things remind her of the accident, and complaining about her eyes and ears, forgetting things and has muddled up things like numbers and words that would usually not be an issue; we’re hoping this will sort itself out in time and is something we want to speak to a neurologist about. Esmae and Elfie are also thrilled to have her home. Once we have the second opinion we will be able to figure out what to do and when to return to the UK, as soon as we possibly can. I have never been so aware of how lucky we are to have quality healthcare in the UK, and freely accessible- this has really hit home how seriously we need to take medical care considerations while abroad, as the help that is technically available is not the help you receive, and it can be life or death. We are hoping that once we are back, medical professionals in the UK can advise us on anything that she might need longer term re her eyes and ears, memory etc.
Thank you to everyone who has sent contacts for medical professionals, we very much appreciate it.