After another 24 hours of hell, we are home. Again, we’re knackered so apologies for the ramble:
Yesterday morning Eira woke up saying that her head really hurt, and she had a temperature. We went into hospital and had another CT scan- her third in just over two weeks. The doctor was concerned that there had been a slow bleed in the brain that was causing pressure and pain, so the CT scan was to see what was going on with that.
We got into hospital at 10am yesterday and the staff couldn’t get hold of a neurologist until late evening so we just had to wait. Eira’s fever was 39C and we had been told by the hospital after our first stay that if she had a fever we should get her antibiotics to prevent or stop a potential infection early. We explained this to the doctor we saw but they refused to give her antibiotics, saying she just needed Calpol. We repeatedly explained and got increasingly insistent and we were ready to go and buy some from a pharmacy and give them to her- eventually they got hold of the neurosurgeon who told the staff to get her antibiotics so she started those last night.
Eira had the CT scan and we stayed in with her- I think she is incredibly brave being so chilled about having CT scans after the first one went so horribly wrong (she vomited while strapped flat on her back and then started bleeding on the night of the accident).
We eventually got results from the CT scan which are that there isn’t a bleed (this is a huge relief as it was our main concern) but that her brain is still swollen which could be exacerbating her symptoms if she gets a virus or infection. The doctor thinks that the air in her brain is gone and that we may be able to fly in two weeks *if* she is well enough. She was exhausted after 90 minutes at a local museum the other day so a door to door journey of at least 25 hours is not doable at the moment, and definitely not while she is still up and down with fever etc.
We were on a horrible ward (flies, dirt, mosquitoes, noise) from 10-6 yesterday but eventually got to a large room which was very quiet and had a bed and sofa for Patrick and I to stay with her.
Since leaving hospital last week Eira hadn’t been having many naps in the day, but yesterday she slept pretty much all day which was worrying. She seemed very lethargic and “dozy” and went from boiling hot to freezing cold. When we got to our room last night she threw up a lot, even though she’d hardly had anything to eat.
She was exhausted even though she slept all day so she went to sleep and we sat staring at a wall for a while – we had really hoped that the worry of her being acutely ill was over and the intensity of the fear and worry when she is evidently unwell is overwhelming.
This morning Eira’s fever had come down and by late morning the neurosurgeon and paediatrition had been in to see us and say that we could take Eira home as she can take her new medication orally (8 lots a day, bless her- she is a trooper, I would be whinging) and to come back soon so they can check on her. We were surprised as last night she seemed so ill but thinking practically we can do her medication and temperature at home and get her back there quickly if she gets worse. Mentally I think being at home is much better for everyone, especially Eira- she really misses her sisters and I think feeling a bit normal even in the apartment is better than being in a hospital room.
Last night I made a very conscious decision to stop the fear rollercoaster that I’ve been on. When your child has an accident and then gets ill and you’re in another country not understanding the language- and throw in a few earthquakes- there is a sense of having absolutely no control. However, laying in bed thinking about all the things that could go wrong, or thinking that every symptom of illness is a sign she’s getting worse, is not helping. Control over how we react to things is the only control we’ve got at the moment so I started focusing on all the positive progress she has made, her absolutely incredible outcome compared to what could have been, and thinking about the future and all the plans we have for her. This morning we sat and looked together at ideas for her birthday party in October and I think it helped us both to focus on something good in the future.
Thank you for your continued messages, thoughts and prayers- we have been blown away by how kind and caring people are- those who read this blog and follow us on Instagram, our friends, family and acquaintances- and that is a very precious thing to have experienced, so thank you, we appreciate them every day.